The Gift of New Life – Amy Ng-Thomson

A bilateral lung transplant in September last year has given a nurse a future she feared she might have lost… 2018 was a year of reminders and learning, as a patient, as a nurse and as a human being. I was reminded of karma, compassion, humility, resilience and patience. Never in my life did I anticipate having to one day rely on someone else, or on so many other people’s decisions to keep me alive. Let alone having to receive a bilateral lung transplant! My transplant journey began in 2006 when only a year after getting married, I was diagnosed
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Heather’s thoughts on Scleroderma.

I’d liked to have titled this article ‘Scleroderma surprises the ordinary girl’, but Kim Tocker has already claimed it in her superb writing. ‘Scleroderma surprises the older woman’ does not quite have quite the right ring I was hoping for. So, I have called it ‘Heather’s thoughts on Scleroderma’. I grew up in Canterbury. My favourite photo of me is just before my 4th birthday, in July, outside with bare feet in the winter. I and my two siblings lived a life in the outdoors in all sorts of weather. I grew up eating Dad’s and Mum’s homegrown veggies. There
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How to cope with Covid19 Lock-down

Focus on What you can control over difficult times. Many of us might be feeling a general lack of control these days—like we’re out of the driver’s seat and just along for the ride. Usually, the more in control we feel over what’s happening in our lives, the more motivated, happier, and less stressed we are. At a time when we’re all reaching to take back the steering wheel, it’s helpful to shift our focus and actions to what we can control and influence. Internal vs. External control We have a strong sense of internal control when we’re in the
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President’s Report April 2020

Hello to you all, I hope that you are all keeping well and staying safe. Firstly a big welcome to our new members over the last few months, it is always nice to see new members being part of our community I hope you all feel welcome. It has been a difficult time for the country since February, when we all got quite concerned about covid19, and as we see New Zealand is showing resilience and with holding together and following the rules we just might pull through and knock this virus on the head, as long as the government
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Adriana’s Journey With Diffuse Scleroderma

I’ve been living with my scleroderma for thirty three years now. In 1986, I was 29 years old and living in Britain, when my scleroderma struck. Despite the dreadful prognosis then, I’ve been living with my scleroderma for thirty three years now. I was more fortunate than most scleroderma patients in England at that time, because I was given an opportunity to be cared for by an extraordinary lady, called Carol Black. This is my story. The onset of my scleroderma followed the breakdown of my first marriage. In February 1986, having never had a serious illness in my life,
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The healing power of horses

Martine Fremaux – How the healing power of horses helps me live positively and successfully despite having Scleroderma… I felt I would like to tell everyone the things Martine has achieved after her Scleroderma diagnosis including her riding, because her news is inspiring and positive. Setting goals which require confidence, strong motivation and hard work have assisted her to overcome the pains, fears, trials and tribulations of living with Scleroderma. Martine was diagnosed with Scleroderma 5 years ago. At the time of diagnosis, she was not working. She lives on a life-style block with her husband Neil, her son Zane, 4
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Memorial – Terry Horne, Allison O’Sullivan and Lorraine Holbrook

Memorial for Terry Horne – 7th of September aged 66 years Nelson. Our Sympathy goes out to Terry’s wife Maggie and family for the great loss of Terry on Saturday the 7th of September 2019. We had great pleasure meeting Terry and Maggie a few years ago and recently at the beginning of this year in Nelson. Terry had a very difficult struggle with Scleroderma for a few years, he showed great courage and determination and kept going with all the loving support from Maggie. Terry was very generous in supporting Scleroderma New Zealand over the years. He was a
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Presidents Report: September 2019

Dear All, time has flown by this past three months and our society has had some difficult times with the very sad loss of another three dearly loved and appreciated members of our society. Allison, Lorraine and Terry. We will be feeling the grief especially the support group members from Invercargill, Nelson and South Auckland. We all need to be kind to ourselves over this difficult time, and understand that we all will grieve differently. Please remember to reach out to one another within your groups for support over this time. We have included a section on how to cope
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Beth Richards – So positive!

Hello to my Scleroderma friends. My name is Beth Richards. I would like to share my Scleroderma journey with you all. From my mid 40s I experienced symptoms, from cracks in my finger tips that bled. Then my fingers were turning white and tingly when it was cold. My fingertips became infected which sometimes led to gangrene, which took months to heal. One finger refused to heal so my surgeon amputated the top knuckle. It doesn’t bother me at all now. I was diagnosed with high BP in 1997 and it is managed with medications. We owned and managed an
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