Adriana’s Journey With Diffuse Scleroderma

I’ve been living with my scleroderma for thirty three years now. In 1986, I was 29 years old and living in Britain, when my scleroderma struck. Despite the dreadful prognosis then, I’ve been living with my scleroderma for thirty three years now. I was more fortunate than most scleroderma patients in England at that time, because I was given an opportunity to be cared for by an extraordinary lady, called Carol Black. This is my story. The onset of my scleroderma followed the breakdown of my first marriage. In February 1986, having never had a serious illness in my life,
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The healing power of horses

Martine Fremaux – How the healing power of horses helps me live positively and successfully despite having Scleroderma… I felt I would like to tell everyone the things Martine has achieved after her Scleroderma diagnosis including her riding, because her news is inspiring and positive. Setting goals which require confidence, strong motivation and hard work have assisted her to overcome the pains, fears, trials and tribulations of living with Scleroderma. Martine was diagnosed with Scleroderma 5 years ago. At the time of diagnosis, she was not working. She lives on a life-style block with her husband Neil, her son Zane, 4
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Memorial – Terry Horne, Allison O’Sullivan and Lorraine Holbrook

Memorial for Terry Horne – 7th of September aged 66 years Nelson. Our Sympathy goes out to Terry’s wife Maggie and family for the great loss of Terry on Saturday the 7th of September 2019. We had great pleasure meeting Terry and Maggie a few years ago and recently at the beginning of this year in Nelson. Terry had a very difficult struggle with Scleroderma for a few years, he showed great courage and determination and kept going with all the loving support from Maggie. Terry was very generous in supporting Scleroderma New Zealand over the years. He was a
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Presidents Report: September 2019

Dear All, time has flown by this past three months and our society has had some difficult times with the very sad loss of another three dearly loved and appreciated members of our society. Allison, Lorraine and Terry. We will be feeling the grief especially the support group members from Invercargill, Nelson and South Auckland. We all need to be kind to ourselves over this difficult time, and understand that we all will grieve differently. Please remember to reach out to one another within your groups for support over this time. We have included a section on how to cope
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Beth Richards – So positive!

Hello to my Scleroderma friends. My name is Beth Richards. I would like to share my Scleroderma journey with you all. From my mid 40s I experienced symptoms, from cracks in my finger tips that bled. Then my fingers were turning white and tingly when it was cold. My fingertips became infected which sometimes led to gangrene, which took months to heal. One finger refused to heal so my surgeon amputated the top knuckle. It doesn’t bother me at all now. I was diagnosed with high BP in 1997 and it is managed with medications. We owned and managed an
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Southland Group finds thing to be glad about

At our January meeting, Jenny, our organiser had us thinking as she asked us to say one thing we are ‘glad’ about. Among the responses were Jenny’s delight that their 16 year-old son had gained his restricted driver’s licence and was out looking for after-school work. Another member had just received word that he had a job promotion, another was they had attended a 90th birthday for their uncle and had a great family catch up. The most practical was Beverly whose husband had made her a sewing table she can use in the warm lounge in the winter for
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Call for health service to offer nail cutting, after salons fail grade

Radio New Zealand carried the group’s expression of concern at unregulated nail and beauty salons and the lax standards at play A public health report found 88 percent of nail and beauty salons in Wellington were not properly disinfecting and sterilising equipment in 2017. Scleroderma New Zealand president Diane Purdie said scleroderma is a condition that hardens and restricts the skin and internal organs, sometimes resulting in clawed hands. Many patients need to go to a nail salon to have their fingernails cut, because they cannot do it themselves. Given the poor safety record for nail salons, Ms Purdie is
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President’s report March 2019

Welcome to the New Year every one, the weather is going well here in Wellington just the right temperature for us. Rob will be greatly missed by us all here in Wellington and on our National committee. Rob had a positive attitude till the very end, always cheerful and he was always coming up with different ways of looking at things. Rob and his wife Chris gave great support to Scleroderma New Zealand as a whole and especially to us here in Wellington and Palmerston North, I believe there was only one meeting that they missed in the three years.
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President’s report December 2018

Hello everyone, well where did that year go to? First of all a huge thank you to the Scleroderma NZ committee, they have had their work cut out for them this year, they have been a huge support and I would like very much to show my appreciation, it has been truly valued. A big thank you also to Barbara and John Spavin who have worked hard on these wonderful newsletters, apart from their continued support on the committee, coming up ten years now. Their work has been a big asset to Scleroderma NZ. Also a big thank you to
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