President’s Report

It has been a busy year, and now Spring is just around the corner which is a big relief to us all. Our Society is coming along nicely; we are now a registered Charity along with our incorporated status and a bank account, so we are now fully operational. On the 1st of August Scleroderma NZ was very busy with both a seminar held in Hamilton organised by Linda Bell, with a very interesting programme and the Wellington group held their normal August meeting with a very interesting Speaker Amanda Johnston from working Hands, a great turn out all round.
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World Scleroderma Day Art Event

Our World Scleroderma Day event gained positive coverage in the local Hutt community paper, The Hutt News on 17 June. Members have been busy setting up at Odlins Gallery to show off their art and craft talents. We hope it may attract interest from someone looking to the group for support. This is the Hutt News’ report. The beauty of glass and crystal bead jewellery, paintings, quilts and crochet work in a Lower Hutt exhibition will be a contrast  to the harshness of a disease suffered by their makers. A team of budding artists from Scleroderma NZ and Friends are
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Point Howard to bus barn challenge

Dianne’s big adventure  You might have heard of the Mt Lowry Challenge on the Eastbourne hills on the east side of Wellington harbour. My husband Gordon and I invented our own version: “The Bus Barn Challenge,“ traversing the Eastbourne ridge to the big bus parking shed. We set out on a Sunday a couple of weeks ago. It was a toasty 25 degrees so I took plenty of extra clothes in case I got a little damp with the climb up Lowry.
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Flight Path of Disability

A support group member’s experience with scleroderma Palmerston North support group member, Catherine Thompson, has completed a series of paintings entitled “Flight Path of Disability”, representing her journey with scleroderma and her my life over the past year. It also expresses grief and loss.
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Going travelling

At the August meeting of the support group, member, Adrienne Burleigh described how she faced down being a scleroderma sufferer and became instead a defiant traveller, determined to see get to the other side of the world, have a holiday and return home. Read about her experience and you’ll see that she triumphed.
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We are on Facebook!

Yes, there’s something to do on Facebook now instead of playing Bejewelled, Farmville or looking at cat pictures from school friends you haven’t met in 20 years. Cushla set the page up and at the time of writing it had more than 30 “likes”. Gaining more “likes” unlocks new functions on the site so do take the time to “like” our group and convince your friends and families to do it too.
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