Adrienne Burleigh releases the results of her survey into your experiences with scleroderma and health services.
There could be 1000 people with scleroderma in New Zealand with many unaware that they have one or other form of systemic sclerosis. That’s not a large number so it’s not surprising that many medical personnel have not ever come across the condition and do not have a great deal of information about it.
Adrienne’s survey, conducted in October 2012, was responded to by people who have been told they have some form of systemic sclerosis. Space permits only a sample: the full survey is available on the support group’s website here: