Welcome to Scleroderma New Zealand

We’re a nonprofit New Zealand based support group dedicated to helping kiwis and their families navigate life with Scleroderma or Systemic Sclerosis. Whether you’ve just received a diagnosis or have been managing this condition for years, you are not alone. Our community offers reliable information, regular local meetups, and a place to connect with others who truly understand. Together, we share experiences, support one another, and grow stronger.

 

What is Scleroderma?

Scleroderma is a rare autoimmune condition that causes hardening and tightening of the skin and connective tissues. It can also affect internal organs and varies widely from person to person. While there is currently no cure, early diagnosis and supportive care can greatly improve quality of life. 👉 Learn more about Scleroderma

Upcoming Events

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Get Involved

There are many ways to be part of our community—whether you’re newly diagnosed, a family member, or someone who wants to help. Every connection matters. Contact Us to get started.

🙌 Join a Local Support Group

Meet others in your region who understand what you’re going through. Our local groups meet face to face every two months for conversation, connection, and support. Find a support group near you

📨 Subscribe to Our Newsletter

Stay in the loop with quarterly updates, helpful resources, and news about upcoming events. View our newsletters

📝 Share Your Story

Your voice matters.

Living with Scleroderma is a unique journey. By sharing your experience, you can help others feel less alone and build understanding in our wider community.

You can share:

• A personal story or reflection
• A helpful tip that made your day easier
• A moment that made you feel seen or supported

Stories can be anonymous if you prefer, and may appear in our newsletter, website, or social media (with your permission). Read our stories

🙋 Volunteer With Us

Every little bit helps.

Our support group runs entirely on the generosity and time of people like you. Whether you can lend a hand at an event, help behind the scenes, or bring your creativity to a newsletter, we’d love to hear from you.

Ways you can help:

• Assist with event planning or setup
• Help manage our social media or email list
• Support local group leaders
• Share your technical, creative, or admin skills

❤ Givealittle

Your support makes a real difference.

You can support New Zealanders living with Scleroderma by making a donation to Scleroderma NZ through Givealittle.

Your donation goes directly toward:

• Printing educational booklets for patients and families
• Providing expert speakers at our seminars and meetings
• Supplying helpful aids like warm gloves and hats
• Supporting our work across regional support groups

💙 Donations over $5 are eligible for a 33% tax rebate with a Givealittle receipt. Donate via Givealittle

📱 Follow Us on Social Media

Stay connected and informed between newsletters by following us on Facebook. We post helpful articles, upcoming event updates, personal stories, and reminders to support each other.

💬 It’s also a great place to connect with others in the community and see what’s happening around the country. Follow us on Facebook

Help spread awareness—like, comment, and share our posts to reach more people affected by Scleroderma in New Zealand.