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President's Report

Bring on Spring, we all need that boost of around the country and to any of you who would like a copy.
I will get you all to notify me of how many you will need, with
sunshine, and we have had a good taste of postal addresses.

it over the last few days. John and Barbara will also make the booklet available on the
website, so that you can download it. We have been given free
I hope that you have all mostly come through the winter spell envelopes from New Zealand Post to send you all a physical
here in New Zealand quiet well. We have been reasonably copy. We will also send out a hospital check list with the
fortunate throughout New Zealand as it has mostly been mild, booklets.
with just with one or two heavy snow storms here and there
around the country. Now that the booklet is organised, there is time for the
committee to think of other ways in which we can help our
We had a sad start to wider scleroderma community. This also means that I am
July with the loss of very happy to hear from any of you out there, of any ideas or
Valerie Smith as you concerns you may have and I will be very happy to pass them
will read about later onto our committee to formulate a way through. You can
in this newsletter, email at diannepurdie@xtra.co.nz
she will be missed
by our group here in Once again, thank you all for your support.
Wellington. Valerie
was one of our Keep well and enjoy the up and coming spring.
founding members.
She had lead a very Dianne
active 86 years and
was a great source of Quilt Fundraiser
encouragement for us all.
Linda Bell has raised $800 for Scleroderma New Zealand by
I am pleased to say that we now have the New Zealand Edition raffling a locally made quilt.
of Understanding and Managing Scleroderma booklet at the
printers and we should all get copies in late September.

The format is very similar to the previous booklet. The new Linda received the quilt after doing a presentation on
booklet has a practical help section for New Zealanders scleroderma and talking about her personal experiences to
nationwide. We are looking at a bright warm and happy front about 80 women at the Waikato Patchwork and Quilter Guild .
cover, so we are currently looking forward to sighting the
graphics before the final print. Part of the proceed from the quilt raffle will go towards this
year's Waikato scleroderma seminar too.

I would like to sincerely thank you all for your support with the
fundraising required to get these booklets printed. It has been
a huge effort from all of you and your families.

A special mention to Linda Bell and Maureen Kirby for their
fundraising ideas and work towards this: Maureen with
the sale of the calenders and Linda with the movie-night
fundraiser and quilt raffle.

Thank you all so very much. I know that we are all going to
benefit from the booklet by distributing it to our GPs, family
members and anyone else who you may think will benefit.

I will be sending out quantities to all the rheumatology clinics

www.scleroderma.org.nz