Page 9 - Scleroderm NZ Inc Newsletter November 16

Final Meeting For the Year

We had a good discussion about living with scleroderma at
the meeting. Here are some of the thoughts:

Doctor are human too. They put their trousers on Be positive. You are a person first. You happen to
one leg at a time - just like you. have scleroderma but you shouldn't let that define
who you are.
Keep a diary. Give it to the doctor. "Here's what's
been troubling me." How about saving your medical details, medications
and other documention on a USB stick and carry it
Does your partner over-compensate for your around your neck on a chord when you're out. It's a
illness? Tell them if they fuss too much. They cheap Medic Alert and will inform doctors.
probably don't even know that they're doing it.
Be positive. It's easy to say but don't look too far
You can take a support person with you when you into the future to worry about the unknown. If you
go to see a specialist. That will help you remember worry a lot about something years away, remember
what the specialist tells you about your illness. a bus may hit you tomorrow.

You can change a doctor who you feel is not taking Buddy up. Don't suffer alone. And you become your
you seriously or treating you as you'd like. buddy's support.

www.scleroderma.org.nz