The scleroderma support group exists to help those suffering the disease and welcomes participation by anyone who has contracted it or who has a friend’s or family connection to it.
Seminar 2019
Cope with Covid-19
Our stories
We are a New Zealand support group.
Scleroderma, also known as systemic sclerosis, is an autoimmune, connective tissue disease that can affect many organs of the body. It is a serious disease which can have a significant impact on patients and their families
The group offers support and information to participants and meets regularly.
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Sat06Apr20248:30anThe Kelvin Hotel 20 Kelvin Street, Invercargill
Scleroderma Seminar 2024
Experts and friends come together for a day of education, discussion and support.
Saturday April 6th, 2024
The Kelvin Hotel 20 Kelvin Street, Invercargill
Opens 8.30am – Presentations from 9.00am
$25 per person – registration. To be paid direct to Scleroderma NZ account 38-9017-0107454-00 Please use your name and seminar as reference.
This seminar is open to anyone interested in learning more about all types of Scleroderma including health workers, patients, carers, family and friends. Morning tea, lunch and afternoon tea provided.
INCLUDES PRESENTATIONS FROM:
• Prof. Simon Stebbings, Rheumatologist Dunedin: Blood vessel problems in Scleroderma
• Dr. Sarah Jordan, Rheumatologist Dunedin: Lung issues in Scleroderma and treatment
• Dr. Katey Jenks, Rheumatologist Dunedin: Skin problems and treatment
• Dr. Paddy O'Connor, Southland Hospital: Gut Problems and treatment
• Dr. Miranda Buhler, Hand Therapist: Hand Therapy
For more info or to register before March 22nd please contact Jenny: jennyred@xtra.co.nz or 027 3166 124
Please let Jenny know your name, address, phone number, email and any dietary requirements.
If you wish to book accommodation at the Kelvin Hotel where the seminar is to be held then give them a call on 03 218 2829 and let them know you will be attending the seminar.
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Sat31Aug20241:30 pmzoomDon't miss out on this opportunity, a good chance to check in with friends, and share our you manage Scleroderma and if you have any problems that you may need help with. Thank you Perry the zoom link below for 1.30pm This Saturday the 31stTime: Aug 31, 2024 01:30 PM Auckland, WellingtonJoin from PC, Mac, iOS or Android: https://otago.zoom.us/j/94106307809...Meeting ID: 941 0630 7809Password: 965110