Monthly Archives November 2018

NZORD is looking for Poster Stories for Rare Disease Day 2019

In previous years, The New Zealand Organisation for Rare Disorders (NZORD) has selected a Poster Child for Rare Disease Day. In 2019 we want to highlight the wider range of personal experiences by featuring the stories of more than one person with a rare disease. We are calling for everyone, of any age, to share their story. Up to four stories will be selected to feature on the Rare Disease Day website and associated materials. Rare Disease Day takes place around the world on 28 February. We are currently exploring the best options for raising awareness of rare disorders during
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