Yearly Archives 2018

Seminar – understanding and managing scleroderma

Saturday 27th October 2018 Venue: St Johns Methodist Church Hall Address: Corner Wellington and Grey Street Hamilton East –parking available at rear of building RESTRATION FEE $ 15 EACH, PAYABLE ON THE DAY Doors open 8. 15 am BRING COINS FOR RAFFLES. PLEASE EMAIL linda.bell@hotmail.co.nz or Ph. 07 8535434 – 027 548 1214 text details
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Hospital care plan endorsed

The New Zealand Rheumatology Association has endorsed a hospital care plan prepared by Dianne, Gordon and Maureen. The leaflet aims to help nurses and other health professionals manage patients in hospital with scleroderma. It is a check-list of some of the main problems a person with scleroderma may experience and how to manage these problems.  
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President’s report September 2018

Hello everyone, I bet you are all having a sigh of relief now that Spring is in the air, which means lots to do in the garden, be careful of your backs, I know I have just given myself a twinge or two from resting it all winter. We had our AGM on the 29th of June and time has flown by since then. We have our 25 committee members, and two ladies Chris Carlyon, Palmerston North, and Lorraine Horlbrook Invercargill, who have stepped down. I would like to thank both Chris and Lorraine for all their work and support
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Hamilton seminar returns 2018

Organiser, Linda Bell is working on the line-up of speakers and topics. Both Hamilton’s and Wellington’s seminars continue to attract prominent rheumatology specialists who can impart a professional view of treatments, their worth and availability. Some parts, of necessity, are technical but there’s always a question time when you can have things explained or get some expert, free advice on something about scleroderma and its related conditions. Keep in mind that scleroderma is a complex auto-immune disease and that most members will know more about its symptoms than many GPs. The Hamilton seminar is your chance to find out more
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Does it or does it not?

A book review by Rob Tomkies. The New Arthritis Breakthrough, by Henry Scammell. The cover states “The only medical therapy clinically proven to produce long term improvement and remiss ion [in] rheumatoid arthritis, Lupus, Juvenile RA, Fibromyalgia, scleroderma, Spondyloarthropathy and other forms of Arthritis”. The book is a biography of Thomas McPherson Brown M.D.. It explains his frustration at having his research ignored by the majority of medicos. Dr Brown died in 1989, 3 years before this publication. The book has aged but not the message Dr Brown believe through early research that the aforementioned conditions were virus-based. There was
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Hospital survival kit

A lot is said about civil emergencies and survival kits. At Wellington’s May meeting, member, Adrienne, showed us all how to how to draw up a hospital kit. She realised when she was a guest of the nurses and doctors that many things she would like to have had with her weren’t to be found. And so, she drew up her own hospital survival kit; those things that sit on a shelf within easy reach at home, taken for granted, but which aren’t to be found in hospital. Any bag or small suitcase can be loaded with the kit, to
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President’s annual report 2018

I hope that you are all keeping warm at this time of year, with plenty of layers, a warm home and don’t forget to exercise to your ability. We are all different on this one. We had sad losses of members this year. We will remember them all in our hearts. I hope that you are all coping. It is difficult and we all cope in different ways, Remember that we are all here to support each other. We also have members experiencing difficult times with their scleroderma. Our thoughts and support are with you all. I thank the committee
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Managing foot pain

Living with painful arthritis in your feet? Can’t find comfortable shoes? Learn more about managing foot pain and how to find the right footwear and shoe inserts. The webinar is led by Robyn Tuohy, Arthritis Educator, and Dr Keith Rome, Professor of Podiatry at AUT University.  
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Podiatry survey

We are surveying members to assess the needs of scleroderma patients in New Zealand. Currently there are at least three DHBs in New Zealand that provide a free podiatry service for scleroderma patients. Scleroderma New Zealand wants to encourage all DHBs to provide a free service for all scleroderma patients, as our foot health is most important. At present most of our scleroderma patients have to pay anything from $50 to $90 per private podiatry visit.
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President’s Report February 2018

Greetings to you all, it is still sunny and warm here in Wellington but we feel concerned for various places around NZ with the flooding and land slides. I hope that your all coping well with what ever comes your way and I hope that you stay safe. We have been saddened by the loss of one of our members Graham Aamodt here in Wellington, it was a sudden unexpected death. It has been a sad time, as he was a very jolly fellow. There will be a memorial notice later in this newsletter. We launched the podiatry survey on
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