Monthly Archives October 2019

Adriana’s Journey With Diffuse Scleroderma

I’ve been living with my scleroderma for thirty three years now. In 1986, I was 29 years old and living in Britain, when my scleroderma struck. Despite the dreadful prognosis then, I’ve been living with my scleroderma for thirty three years now. I was more fortunate than most scleroderma patients in England at that time, because I was given an opportunity to be cared for by an extraordinary lady, called Carol Black. This is my story. The onset of my scleroderma followed the breakdown of my first marriage. In February 1986, having never had a serious illness in my life,
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The healing power of horses

Martine Fremaux – How the healing power of horses helps me live positively and successfully despite having Scleroderma… I felt I would like to tell everyone the things Martine has achieved after her Scleroderma diagnosis including her riding, because her news is inspiring and positive. Setting goals which require confidence, strong motivation and hard work have assisted her to overcome the pains, fears, trials and tribulations of living with Scleroderma. Martine was diagnosed with Scleroderma 5 years ago. At the time of diagnosis, she was not working. She lives on a life-style block with her husband Neil, her son Zane, 4
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Memorial – Terry Horne, Allison O’Sullivan and Lorraine Holbrook

Memorial for Terry Horne – 7th of September aged 66 years Nelson. Our Sympathy goes out to Terry’s wife Maggie and family for the great loss of Terry on Saturday the 7th of September 2019. We had great pleasure meeting Terry and Maggie a few years ago and recently at the beginning of this year in Nelson. Terry had a very difficult struggle with Scleroderma for a few years, he showed great courage and determination and kept going with all the loving support from Maggie. Terry was very generous in supporting Scleroderma New Zealand over the years. He was a
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Presidents Report: September 2019

Dear All, time has flown by this past three months and our society has had some difficult times with the very sad loss of another three dearly loved and appreciated members of our society. Allison, Lorraine and Terry. We will be feeling the grief especially the support group members from Invercargill, Nelson and South Auckland. We all need to be kind to ourselves over this difficult time, and understand that we all will grieve differently. Please remember to reach out to one another within your groups for support over this time. We have included a section on how to cope
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