Monthly Archives March 2016

Tina talks to TV3 about scleroderma and packaging

Wellington member, Tina, featured in a TV3 news programme, Story, about her daily struggles with packaging and the need to make it easier for everyone to get at stuff without hurting their hands in the process. By Ryan Bridge Have you ever struggled to open a can, opening the lid of a jar or getting a pair of scissors out of its packaging? The answer is probably yes so imagine what it must be like if you suffered from arthritis. Story met Tina McLean who suffers from arthritis and takes pride in her long painted nails. But they’re not just
Read More

Golden Paste is a Golden Remedy

We learn something new every time we attend a Scleroderma meeting. A couple of meetings ago a new attendee suggested that I could replace my paracetamol, which I was taking at 3-hourly intervals, with “golden paste”. She said that she even gives it to her horses for arthritis, with excellent effect apart from leaving a yellow “smile” around their faces. She said the recipe could be found on the internet, the main ingredient being turmeric. We bought turmeric from Commonsense Organics on the way home and Chris immediately made a batch. The hope was that it would help me replace
Read More

President’s Report

We have been extremely lucky with summer this year, it has been long and very warm and I’m sure it has given us all some relief in one way or another, but one of our biggest hurdles has been to keep cool, but not to get cold in the process. The society is coming together quite well, our booklets will be printed and posted to all rheumatology services and GPs who are keen to learn some practical and basic knowledge of Scleroderma. We’ll send the hospital check-list to those of you who want it with the help of an NZ
Read More

There and back again – Adrienne’s trip

It’s northern November, it’s getting cold and days are shortening. The news talks of terrorist attacks in Paris. Europe’s railway stations and border crossings are crowded with refugees. Who would want to go to Europe at this time of year. Well I did – and I went. As part of my bucket list I wanted to do the Christmas Markets that are held throughout Europe in November and December. I’d combine it with a cruise along one of the major rivers. The desire culminated in four kiwis and three Americans joining the last Christmas Market cruise on the Danube for
Read More