Archives for News

Seminar – understanding and managing scleroderma

Saturday 27th October 2018 Venue: St Johns Methodist Church Hall Address: Corner Wellington and Grey Street Hamilton East –parking available at rear of building RESTRATION FEE $ 15 EACH, PAYABLE ON THE DAY Doors open 8. 15 am BRING COINS FOR RAFFLES. PLEASE EMAIL linda.bell@hotmail.co.nz or Ph. 07 8535434 – 027 548 1214 text details
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Hospital care plan endorsed

The New Zealand Rheumatology Association has endorsed a hospital care plan prepared by Dianne, Gordon and Maureen. The leaflet aims to help nurses and other health professionals manage patients in hospital with scleroderma. It is a check-list of some of the main problems a person with scleroderma may experience and how to manage these problems.  
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Managing foot pain

Living with painful arthritis in your feet? Can’t find comfortable shoes? Learn more about managing foot pain and how to find the right footwear and shoe inserts. The webinar is led by Robyn Tuohy, Arthritis Educator, and Dr Keith Rome, Professor of Podiatry at AUT University.  
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Podiatry survey

We are surveying members to assess the needs of scleroderma patients in New Zealand. Currently there are at least three DHBs in New Zealand that provide a free podiatry service for scleroderma patients. Scleroderma New Zealand wants to encourage all DHBs to provide a free service for all scleroderma patients, as our foot health is most important. At present most of our scleroderma patients have to pay anything from $50 to $90 per private podiatry visit.
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World Scleroderma Day 29th June

World Scleroderma day gives the chance for the people with Scleroderma and their families to burn the torch, to the world, to help raise awareness. You need to be strong to cope with this condition and we stand together. What is Scleroderma? Scleroderma (Systemic Sclerosis) is a rare, chronic disease of the immune system, blood vessels and connective tissue. It is an autoimmune condition, meaning the immune system becomes overactive and attacks healthy tissue in the body. The name of the condition comes from the Greek, ‘sclero’ for hard, and ‘derma’ for skin. This hardening of the skin can be one
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World Scleroderma Day Art Event

Our World Scleroderma Day event gained positive coverage in the local Hutt community paper, The Hutt News on 17 June. Members have been busy setting up at Odlins Gallery to show off their art and craft talents. We hope it may attract interest from someone looking to the group for support. This is the Hutt News’ report. The beauty of glass and crystal bead jewellery, paintings, quilts and crochet work in a Lower Hutt exhibition will be a contrast  to the harshness of a disease suffered by their makers. A team of budding artists from Scleroderma NZ and Friends are
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