Archives for Our stories

There and back again – Adrienne’s trip

It’s northern November, it’s getting cold and days are shortening. The news talks of terrorist attacks in Paris. Europe’s railway stations and border crossings are crowded with refugees. Who would want to go to Europe at this time of year. Well I did – and I went. As part of my bucket list I wanted to do the Christmas Markets that are held throughout Europe in November and December. I’d combine it with a cruise along one of the major rivers. The desire culminated in four kiwis and three Americans joining the last Christmas Market cruise on the Danube for
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Waikato has staged another successful scleroderma seminar

Attendees came from Kaitaia, Auckland, Rotorua, Matamata, Tokoroa, Whangamata and there was a good turnout from Hamilton. Many had not attended a seminar before and had just been diagnosed. As we had become incorporated I was able to raise funds to cover the seminar costs involved. I thought the day went very well, I had family and friends doing the catering and there was plenty to eat. There were excellent speakers: registrar, podiatrist, occupational therapist optometrist and a respiratory physician. We also watched the DVD Documentary “Beneath the Surface”. With the help of social media outlets Christy Caffrey connects to
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Point Howard to bus barn challenge

Dianne’s big adventure  You might have heard of the Mt Lowry Challenge on the Eastbourne hills on the east side of Wellington harbour. My husband Gordon and I invented our own version: “The Bus Barn Challenge,“ traversing the Eastbourne ridge to the big bus parking shed. We set out on a Sunday a couple of weeks ago. It was a toasty 25 degrees so I took plenty of extra clothes in case I got a little damp with the climb up Lowry.
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Flight Path of Disability

A support group member’s experience with scleroderma Palmerston North support group member, Catherine Thompson, has completed a series of paintings entitled “Flight Path of Disability”, representing her journey with scleroderma and her my life over the past year. It also expresses grief and loss.
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Going travelling

At the August meeting of the support group, member, Adrienne Burleigh described how she faced down being a scleroderma sufferer and became instead a defiant traveller, determined to see get to the other side of the world, have a holiday and return home. Read about her experience and you’ll see that she triumphed.
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We are on Facebook!

Yes, there’s something to do on Facebook now instead of playing Bejewelled, Farmville or looking at cat pictures from school friends you haven’t met in 20 years. Cushla set the page up and at the time of writing it had more than 30 “likes”. Gaining more “likes” unlocks new functions on the site so do take the time to “like” our group and convince your friends and families to do it too.
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